First of all I would like to say that I am so sorry for your loss I came across your story almost 3weeks before I myself was to have plastic surgery. I began to do research on this MH condition and I must admit I began to have second thoughts. The next step I took was to speak with my surgeon to see if he was aware of this condition and how would he handle this if it were to occur. He asked me why would I ask about such a rare condition and thats when I began to tell him Stephanie's story. To his surprise I asked him if the antidote would be in the operating room and I also quizzed him on the amount of cc's that should be used if this were to occur. He assured me that it would be on hand which gave me some comfort. As I was checking out with the receptionist the Dr. walked to the front and he said to me do you know that you know more than 99.9% of the patients that walk in here in relation to this condition. I smiled and I felt an overwhelming peace. I have told so many people in the last few weeks about Stephanie's Story. I have tried to educate them on MH and provide the answers that I did not know. I have given them a website to get more information on this condition. Finally, I pray that each day becomes easier for you and your family. I know how hard it is to lose a loved one and I hope that by my telling you my story it will give you some peace. If this facility that I chose to go to was not prepared, I believe with all my heart they GOT prepared.
Message by Kelly (a surgery center nurse), Email - email@example.com
I am so sorry for the loss of your beautiful daughter. I am the nurse manager and risk manager for a plastic surgery center and know much about MH. Stephanie's death breaks my heart - she could easily be one of our beautiful young patients. It is awful to think such a tragic event is needed for more facilities to know about and be prepared for an MH event. I am so thankful you are using part of Stephanie's site to include information from MHAUS - a wonderful organization. I am currently taking this time for our annual MH training. My prayers are with Stephanie's entire family.
Message by A Stranger, Email - firstname.lastname@example.org
I to had breast surgery in an office setting while living in
Message by Deborah xxxxxx, RN, Email - email@example.com
Your beautiful daughter has been in my thoughts and prayers. As an OR nurse, I find the cause for her death no less than horrific. I know that her death has served as reminder to many in the medical profession that we can never be too diligent or too prepared for any kind of emergency situation. I wish I could give your family a hug, but will just send love to you all and know that there is at least one OR that is now better prepared than ever to fight MH!
Message by a Perioperative Nurse, Email - firstname.lastname@example.org
I am a nurse in the operative room of a large hospital. The irony of your loss is the cover article of the AORN connection new letter of March 2008, Preventing Malignant Hyperthermia. I learned of your loss as I read this article at work and an Anesthesiologist mentioned your story to me. Your tragic story has touched me in so many ways. As my co-workers and I complete our so many successful procedures daily, it seems so unlikely of such a tragedy to occur. Your story has opened my eyes to make sure that our department is well prepared for such an event. I'm sorry for the loss of such a beautiful young lady, but I hope I can educate more perioperative health care workers to prevent other tragic losses.
Message by Barbara xxxxx, M.D.
To The Kuleba Family,
It is very sad that your daughter has died. I am touched by the sadness that you must feel.
I can't imagine the depth of your pain, and am sorry that you must go through such a difficult experience in life. I want to thank you for the very important work you are doing on Malignant Hyperthermia. I am a physician, and did not fully realize all aspects of this diagnosis. You have inspired me, to review the literature, and are now in contact with my Neurology colleagues, to see if we should consider patients with Dysautonomia as an increased risk for developing Malignant Hyperthermia.
You are helping other patients and their families, to avoid the loss of their loved ones. Thank You for reaching beyond your grief, to give to others. It is such a loving human thing to do. It is the "best, inside of us" that you are demonstrating and sharing. Stephanie Jude must have been a wonderful, loving girl, with such a wonderful, loving family. Her memory will live on as by her death, she will help many patients, to live. Your willingness to give, in the midst of pain, is inspiring all of us, to share, the best, inside of us. Thank you. May God bless you, and comfort you. My husband and I will pray for your comfort and peace.